From discovery to treatment – A new era for rare lung diseases
Transforming scientific discoveries into real-life solutions to treat rare respiratory diseases
What we do
We are committed to accelerating the discovery and development of life-changing therapies and creating pathways to bring these treatments to those living with rare respiratory diseases.
Our Centre brings together patients, researchers, clinicians and industry to turn scientific discoveries into real-life solutions.
Video: Introducing the Centre
“We wholeheartedly welcome the new RRD Centre as an opportunity to raise the profile of rare diseases like lymphangioleiomyomatosis, reduce diagnostic errors, and enable the development of treatments for a currently incurable condition that almost exclusively affects women.
Thirty years ago, almost nothing was known about LAM. Today, clinical research has made great strides, and patient collaboration has played a big part in this. At LAM Action we are excited at the potential for more cooperation and faster progress for our disease and other rare respiratory conditions that can be so distressing and destructive to patients and those who love and care for them”
Philippa Thomas, LAM Action
“I hope the RRD Centre will lay the foundations to transform outcomes for patients with PCD by building the infrastructure needed to accelerate the development of disease-modifying treatments.
By placing patient voices at the heart of its work and driving system-wide innovation, it has the potential to become a national and global leader in rare respiratory disease.”
“I hope that this fantastic collaboration brings about new discoveries faster than a singular research group approach, and that these translate into real change for patients living with rare respiratory disease.”
“Our hope is that the LifeArc RRD Centre becomes a catalyst for real change, accelerating research, driving innovation, and ultimately delivering tangible improvements for people living with rare respiratory diseases like Primary Ciliary Dyskinesia.
We know that collaboration is key, and we are excited by the Centre’s potential to bring together researchers, clinicians, and patient communities to fast-track new treatments and improve diagnosis. Most importantly, we hope it brings renewed hope to families affected by these complex conditions.”
How we accelerate therapeutic step change for rare respiratory diseases
Patient-first innovation
Patient experiences guide our research, to ensure our work stays meaningful and impactful.
Central biobank
UK-wide network of centres to register and collect data from patients with rare lung diseases, to create a centralised biobank.
Modelling disease
Developing lab models that mimic the human lung to help us develop life-changing treatments.
New therapies
Screening existing medicines to find new uses for rare respiratory diseases, as well as developing novel genetic therapies.
Shaping the future of care
Training the next generation of experts to develop clinical leaders in this field.
New therapies
Screening existing medicines to find new uses for rare respiratory diseases, as well as developing novel genetic therapies.
Shaping the future of care
Training the next generation of experts to develop clinical leaders in this field.
How to get involved
There are many ways to get involved in our rare respiratory disease research. Whether you’re a researcher, patient advocate, or industry partner, your support can help advance innovation and improve patient outcomes.
1. For researchers
Collaborate with us to advance translational science for rare respiratory diseases (RRDs).
2. For patients and patient organisations
Learn how to participate and share your experience to help shape our research.
3. Industry
Partner with us to translate discoveries into impact.